My illness began as soon as I was born, an orthopedic made the first FD diagnosis proposal when I broke the femoral bone at age 3. By 13 years I had 7-8 total fractures mainly in the femur, left hand and left side. I had 2 surgeries at the age of 8 years to restore the femur, successfully but not permanently, one another at the age of 21 after a very bad thigh fragmentation. I still have the metals and screws inside my leg. Last fracture in my left hand in 2009, 2 months of treatment. Since then, my situation is stable, my bones sometimes harm me, I try to be in good physical shape.
My face, my whole head and almost all of my left side are deformed, but I can walk even with difficulty, but I am fully functional in all my everyday activities.
I'm trying to take care of myself and my family. I love more than all my children and my wife, they also take very good care of me.
I have been very sad about my situation for many years, it's a little hard to live with physical pain and it causes pains and disturbances in the soul.
Since my children were born I feel better and better.
For the moment I enjoy my life, I accept my illness as a gift, as a door to a world where only a few people can see or imagine the existence of. The world of God's love.