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What are the best treatments for HFE hereditary haemochromatosis?

See the best treatments for HFE hereditary haemochromatosis here

HFE hereditary haemochromatosis treatments
14 answers
Venesection - drawing blood from the body similar to a blood donation. This is an extremely effective and almost universal treatment. The frequency of venesections depends on the degree of initial iron overload at diagnosis. It may require only a few venesections or could take 50 - 100 over a one to two year period. Maintenance venesection every two to three months is usually required for whole of life after the initial de-ironing phase.
In very rare cases where venesections are not tolerated, cheating drugs may be used to remove iron.
In some counties like Australia, the blood authority may perform the venesections at a doctor's referral and use the blood.

Posted May 20, 2017 by Tony Moorhead 2051
Most of the doctors will scribe a blood sampling until the iron is out of your system.

Posted Jun 3, 2017 by bewiki 4317
Therapeutic Phlebotomy

Posted Jul 22, 2017 by Tina 1501
The treatment for HFE is phlebotomy. Personally, I've noticed changes in my diet (specifically cutting out red meat, avoiding vitamin c, and not drinking) can help reduce my ferritin levels as well.

Posted Jul 22, 2017 by alohaitsaj 1501
Regular phlebotomies until in maintenance. Some refrain from over exposure to heme iron.

Posted Jul 22, 2017 by Salena 2001
Venesections is the most common treatment and most effective in normalizing iron levels. There are medication therapies available but are not commonly used due to the side effects

Posted Jul 23, 2017 by Lorna 701
Regular venesections

Posted Jul 23, 2017 by Warbychick 1901
Phlebotomies
NSAIDS
Diet modifications

Posted Jul 23, 2017 by Stacy 550
Regular phlebotomy which brings the Serum Ferritin down to below 50 and which brings the Transferrin Saturation down to below 45-50 %.

Posted Jul 25, 2017 by Ketil Toska 2051
Anti inflammatory medications, effective and informed Drs

Posted Aug 2, 2017 by Natalie 2000
Giving Blood makes me feel great! Then I get a message as a reward.

Posted Sep 8, 2017 by Eileen 700
Blood letting and watching your diet

Posted Apr 1, 2018 by Aimee 300
Blood draw 4 -8 times a year

Posted Nov 13, 2021 by yvonne 900
Translated from french Improve translation
No red meat or shellfish, etc

Posted Jul 24, 2017 by Franck 200

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Stories of HFE hereditary haemochromatosis

HFE HEREDITARY HAEMOCHROMATOSIS STORIES
HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
HFE hereditary haemochromatosis stories
I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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