Story about Intracranial Hypertension , Fibromyalgia.

IH & Me

Sep 8, 2017

By: Ali

Year Condition Began: 2014


Hey everyone! I would like to introduce myself. I'm Ali, 25, originally from Montana but have lived in Wyoming since 2010. I was lucky enough to marry the most wonderful and caring man in October of 2016. I am a doggie mom to our 2 yr old cockapoo, named Lilli, and to our 1 yr old lab/chow mix, named Maxx. They are both in training to be seizure related service dogs. I was diagnosed with Intracranial Hypertension or Pseudotumor Cerebri in October of 2014. I have since had a shunt placed. I have also been diagnosed with Fibromyalgia and Postural Orthostatic Tachycardia Syndrome, among a growing list of other diagnoses. These dysautonomia conditions have left me with a long list of symptoms, and an even longer list of failed treatments. I run a local support group for those struggling with chronic pain.

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