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Is it easy to find a partner and/or maintain relationship when you have Lichen Sclerosus?

People with experience in Lichen Sclerosus give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Lichen Sclerosus. What are the possible difficulties in having a relationship?

Couple and Lichen Sclerosus
9 answers
Partners of those with Lichen Sclerosus need to be very patient and understanding since the disease often effects a couple’s sex life. Intercourse may be difficult for many, or impossible for some. However, a couple can find other ways to be intimate. The use of dilatory help to keep the vagina stretched out and help prevent fusing. Patients are encouraged to have sex as much as possible to keep things in working order. Some women find there is a lack of sexual feeling, particularly if the clitoral hood has fused over the clitoris.

Posted Oct 8, 2017 by Cindy 3050
Woah, it takes an extremely understanding man to support a woman with LS.
My advice, get yourself to a manageable state and be honest. Investigate procedures that can help if you are sexually active. Hold on to an understanding partner ..... they are more priceless than 'gold'.

Posted Oct 9, 2017 by annie-mcg 2000
It can be challenging. But if you are with the right person they will be supportive of your needs. Depending on your severity it can cause intimacy issues. But there are ways that can help, including dialators, lube, patience

Posted Aug 25, 2018 by Tbreck 2500
It is not easy to find a partner, because it will be difficult to have sex and most people haven't heard of LS.

Posted Oct 11, 2018 by Allicia 2500
I have been married for 35 years and about 6 weeks ago I found out that I have LS, I have a great partner who understands my (our) problem, our sex life is not very active at the moment, but that does not bother either of us we still love each other to bits, the most importent part of our love life is that we are always there for one and other, to us love isn't only about the sex but being there to support each other throughout life now and what's still to come

Posted Mar 23, 2019 by kittybv 200
I have been married for 35 years and about 6 weeks ago I found out that I have LS, I have a great partner who understands my (our) problem, our sex life is not very active at the moment, but that does not bother either of us we still love each other to bits, the most importent part of our love life is that we are always there for one and other, to us love isn't only about the sex but being there to support each other throughout life now and what's still to come

Posted Mar 23, 2019 by kittybv 200
It is not easy on your partner or potential partner.

Posted Apr 26, 2019 by Kelly 3100
Many people who suffer from LS find it extremely hard or sometimes impossible to be intimate with a partner due to the pain of having sex. Many women and men with LS shy away from getting a new partner for fear of the pain or them not understanding.

Posted May 26, 2019 by Emma 3560
Absolutely to your first 2 questions. Be up front. See if they love you for you and not for your body. Explain that this may go in and out of remission. be nurturing and caring, and sensual but realize that penetration may be very painful and often not possible.

Posted Aug 22, 2019 by Diann 2500

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Stories of Lichen Sclerosus

LICHEN SCLEROSUS STORIES
Lichen Sclerosus stories
Just diagnosed last year. Symptoms have now started to become uncomfortable and are worse than I thought they were. Not taking any treatment. Dermatologist told me to only use the steroid cream if the symptoms were bad. discovered the facebook page 2...
Lichen Sclerosus stories
Diagnosed in 2011 at the age of 47, after the initial itching rash was resolved by Clobetasol, the only remaining symptom was painful intercourse. Then, a couple years later I started having mostly daily burning of the vulva, and irritation of the u...
Lichen Sclerosus stories
Diagnosed aged 40. Went into remission using clobesterone ointment. Began flaring slightly before periods as menopause began. Currently aged 53 and experiencing disappearance of architecture. Not much in way of itching thank goodness. No tears. I use...
Lichen Sclerosus stories
After a diagnosis of RA in 2001 the goal was to keep going. I finally took an early retirement in 2006. Chronic Fatigue soon became evident. In 2016 my symptoms began manifesting themselves. I thought it was a yeast infection. I thought I had an...
Lichen Sclerosus stories
Started itching April 2016 used various creams over the counter at chemist

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