Story about Lyme Disease , Adenomyosis, Babesiosis, Cat-scratch Disease, Cluster Headaches, Endometriosis, Hashimotos Disease, Migraine, Raynaud's disease.

My Lyme disease nightmare

Mar 10, 2018

By: Niki


Bit 4x (2x deer tick, 1x mosquito, and 1x a spider. All had a bullseye). My husband also was bit with me in 1996 fishing in brush. We had no idea people got Lyme disease. We assumed it was a deer disease. My husband started having pain, then became manic, hallucinating, etc and took his life in May/2005. I was diagnosed positive with MS in 2002. I was bit again in July/2014 this time I was very sick within a few weeks of the bite. I had Bells Palsy, Severe migraines, seizures, tick paralysis, neck and back severe pain, severe pain through my legs and feet, cognitive issues, insomnia, ringing in my ears, inability to walk, struggled finding words, and so much more. Again, I saw 13 more doctors all stating I was positive for MS, Fibromyagia, and 2 doctors said ALS. I knew that I didn’t have MS or ALS. Right before this I was training to do a marathon. I felt Fibromyalgia is a symptom, not a syndrome, of those with immune disorders. I was first diagnosed by webmaster app. That’s when I knew what I had. Nobody would test me and even when they saw the bullseye I was sent to a dermatologist. Wow! SMH! Finally, I was diagnosed by an LLMD. I went in remission and was infected again by a mosquito. That’s when my test showed 8 bands positive and I was still not logged since I didn’t meet the criteria. Seems it doesn’t count if it was a mosquito. Makes so much since. NOT! I’m in remission and have been for 10 months, but may now have lymphoma. Currently being checked for the issue. Both of my boys had congenital Lyme. Both have been in remission for 4 years. My oldest may be getting sick again.
Story about Lyme Disease

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


A Lyme Disease interview

View interview


Is Lyme Disease hereditary?

Is Lyme Disease hereditary?

What is Lyme Disease

What is Lyme Disease

Prevalence of Lyme Disease

What is the prevalence of Lyme Disease?

Lyme Disease is also known as...

Lyme Disease synonyms

Lyme Disease life expectancy

What is the life expectancy of someone with Lyme Disease?

Lyme Disease diagnosis

How is Lyme Disease diagnosed?

Lyme Disease prognosis

Lyme Disease prognosis

Couple and Lyme Disease

Is it easy to find a partner and/or maintain relationship when you hav...