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Which advice would you give to someone who has just been diagnosed with Marfan Syndrome?

See some advice from people with experience in Marfan Syndrome to people who have just been diagnosed with Marfan Syndrome

Marfan Syndrome advice
5 answers
Read about it, ask questions. Don't be sad but be happy you know own what's wrong with you

Posted Feb 27, 2017 by Griet 1000
try and smoke some weed.

Posted Oct 16, 2017 by Henrik 1600
Enjoy lige
Do exercise at home
Find other people with Marfan
Hey a check Up Evert year
No heavy lifts

Posted Jan 21, 2020 by Birgit Ottilie Madsen 1220
Translated from spanish Improve translation
People with Marfan syndrome may have strong emotions, including anger, and fear. Also may be concerned about whether their children will have Marfan syndrome.

People who have Marfan syndrome need to have:

an appropriate medical care
the correct information
a solid social support.
The more genetic information it can also help you learn more about the disease and the risk of transmitting it to their children.

Posted Apr 15, 2017 by Carola 1360
Translated from spanish Improve translation
That report very well of all the options and future problems
And periodic controls

Posted Oct 5, 2017 by Helena 2550

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