Living with Narcolepsy. How to live with Narcolepsy?

Can you be happy living with Narcolepsy? What do you have to do to be happy with Narcolepsy? Living with Narcolepsy can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Narcolepsy

Acceptance of yourself and a great support network. Narcolepsy is a lonely disease. I love my job because everyone there knows I have narcolepsy and they've never been exclusive and are the reasons I can get up in the morning.

Posted Mar 2, 2017 by Rachael 1050

Have understanding and supportive people around you. Don't hide the condition but don't let it rule your life either

Posted Mar 2, 2017 by Sarah 1000

I have a mild form so i may not be the best person to say but based on my experience of living with narcolepsy you can be happy and live relatively normal life.
I adjust my day around the condition.
Sleep in the day if its possible.
Eat properly.
Get a decent amount of sleep at night.
Take my drugs even with side effects.
Have supportive family who understand if i fall asleep on them or cancel seeing them because i am too tired.

Posted Mar 3, 2017 by Dawnie73 600

Narcolepsy can be very debilitating and also isolating. It is important to surround yourself with people who understand your condition and can offer support if needed. I personally have found my hobby of quilting to be relaxing and helpful in dealing with the day to day struggles.

Posted Apr 27, 2017 by Jennah 1100

It's very important to accept that you have narcolepsy to even be able to have a chance to be happy. For some it's hard to accept it and need some help from a psychologist and it's nothing wrong with that. And some will accept it easier, we are all different.
When you have accept the fact that you have narcolepsy I would advise you to just go on with your life like you did before but be aware of that you are gonna have to make some changes in your life to make it work.
And remember to keep friends and family close!

Posted May 7, 2017 by Malin 1050

Do the best you can. Each day I'd new start. Yes, you can be happy. Give it all to the Lord! Find a doctor who is knowledgeable and live as healthy a lifestyle as possible. Keep a regular sleep schedule as best you can. Realize how strong you really are. Join support groups on Facebook and in your area!! Start one if there isnt one. Join National Narcolepsy go to their website. Go to the yearly conference if possible.

Posted May 10, 2017 by Susan 1000

Yes you can be happy living with narcolepsy. Plan your days. Go shopping to the movies meet up with friends who are supportive of you. When you feel sleepy during the day have a sleep. Go to bed before midnight. Get into a routine.

Posted Jun 12, 2017 by Faith 2000

In a perfect world, if one could sleep whenever they want, one could be happiest. You can be happy.

Posted Jun 13, 2017 by Karen 2000

Yes you can. I try to keep my mind active while playing with my kids

Posted Aug 17, 2017 by Laurie 2271

With support, treatment and hard work it is possible to live a happy life with Narcolepsy. Finding supportive people at work, school and in your personal life is key.

Posted Oct 6, 2017 by Aaron 2811

Well, its a process
You'll have to learn it. Even if you read you will not understand. I have it for many years and still dont.
Dont compare yourself with others. Dont fall for that one.
Take your medication always with you. Take naps if you can. Keep on your sleep higiene schedule. Take notes of what to do. Have a good diet plan (if possible at the same schedule every day), dont drink alcohol. Attention with the carb food, increases the sleep. If you can exercise, don exagerate! Keep you emotions under control. Try not to get in a fight or think to much in a problem! Get the stress away from you! Surrund yourself of supportive positive friends and family. Love yourself and be gratefull, there are many other worse diseases.

Posted Nov 21, 2017 by sns 1510

I don't know if it's possible to be 'happy' with narcolepsy. The disorder affects each person differently. But to 'live' with narcolepsy - that's a different question. Take any prescribed medication. If medication isn't working or its effectiveness seems to be decreasing, make sure you talk to you doctor. Pay attention to your body and learn the signs of an oncoming sleep attack. Try to make sure the people around you know what's going on. Try to make sure you're in a safe place.

Posted May 21, 2018 by chazer25 3050

Take naps when you feel tired, or your body will make you sleep later whether you want to or not.

Posted Aug 4, 2019 by Ottery 1300

The correct diagnosis is key! Sleep routine is a must and xyrem or xywave. Sometimes stimulants are also needed during the day like Adderall and modafinal which is what I take. Also a walk or any exercise helps get you moving.

Posted Oct 13, 2021 by [email protected] 1700

Adjust your choices of treatment according to the symptoms that bother your lifestyle the most.

Posted Jul 13, 2023 by Feri Ascencion 1833

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because trying to life to be as normal as possible. if, of course you can be happy. try to assimilate as best as possible the disease

Posted Apr 27, 2017 by marisa rosello 1050

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With it, even if it is not easy...

Posted Apr 27, 2017 by Laïli 1000

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How to live depends on the attitude with which you confront.
You can be happy with a positive attitude.
You have to accept the limitations and enjoy the moments of lucidity.

Posted Nov 2, 2017 by Juan 1500