1

Which are the symptoms of Narcolepsy?

See the worst symptoms of affected by Narcolepsy here

Narcolepsy symptoms

Symptoms of Narcolepsy


Narcolepsy is a chronic neurological disorder that affects the brain's ability to regulate sleep-wake cycles. It is characterized by excessive daytime sleepiness, sudden loss of muscle tone (cataplexy), hallucinations, and sleep paralysis. These symptoms can significantly impact a person's daily life, affecting their ability to work, drive, and engage in social activities.



Excessive Daytime Sleepiness (EDS)


Excessive daytime sleepiness (EDS) is the hallmark symptom of narcolepsy. Individuals with narcolepsy often experience an overwhelming and persistent need to sleep during the day, regardless of how much sleep they have had at night. This excessive sleepiness can make it difficult to stay awake and alert, leading to impaired concentration, memory problems, and decreased productivity.



Cataplexy


Cataplexy is a sudden loss of muscle tone triggered by strong emotions such as laughter, surprise, or anger. It is a unique symptom of narcolepsy and can range from mild muscle weakness to complete paralysis. During a cataplectic episode, individuals may experience drooping of the face, slurred speech, buckling of the knees, or even collapse. Cataplexy can be highly disruptive and may cause embarrassment or injury.



Hypnagogic and Hypnopompic Hallucinations


Hypnagogic hallucinations are vivid, dream-like experiences that occur while falling asleep, whereas hypnopompic hallucinations occur upon waking up. These hallucinations can be visual, auditory, or tactile and are often frightening or disturbing. Individuals may see vivid images, hear sounds, or feel sensations that are not actually present. These hallucinations can be difficult to distinguish from reality and can cause significant distress.



Sleep Paralysis


Sleep paralysis is a temporary inability to move or speak while falling asleep or waking up. It occurs when the brain transitions between sleep and wakefulness and is often accompanied by vivid hallucinations. Sleep paralysis can be a frightening experience as individuals may feel trapped or unable to escape. The episodes typically last for a few seconds to a few minutes but can be highly distressing.



Fragmented Nighttime Sleep


People with narcolepsy often experience fragmented nighttime sleep. They may have difficulty maintaining a continuous sleep pattern and frequently wake up throughout the night. This can lead to insomnia, frequent awakenings, and a feeling of unrefreshing sleep. As a result, individuals with narcolepsy may feel perpetually tired and struggle to achieve restorative sleep.



Other Symptoms


In addition to the primary symptoms mentioned above, narcolepsy can also cause other secondary symptoms, including:



  • Automatic behaviors: Individuals may perform routine tasks without conscious awareness or memory.

  • Microsleep episodes: Brief episodes of sleep that can occur during activities such as driving or working, leading to potential accidents.

  • Weight gain: Some individuals with narcolepsy may experience weight gain due to decreased physical activity and metabolic changes.

  • Depression and anxiety: The chronic nature of narcolepsy and its impact on daily life can contribute to the development of depression and anxiety disorders.



If you or someone you know is experiencing these symptoms, it is important to consult a healthcare professional for a proper diagnosis and appropriate treatment. Narcolepsy is a lifelong condition, but with proper management, individuals can lead fulfilling lives and minimize the impact of symptoms on their daily activities.


Diseasemaps
37 answers
Obviously the excessive daytime sleepiness. It's hard to function as a normal person when your entire life revolves around sleep.

Posted Mar 2, 2017 by Rachael 1050
Constant brain fog. Daytime sleepiness,

Posted Mar 2, 2017 by Sarah 1000
Excessive daytime sleepiness, inability to wake up, brain fog, lack of drive to do things in spare time, forgetfulness, extreme nightmares

Posted Mar 2, 2017 by Haley 100
The constant feeling of tiredness and brain fog. I can't remember well. The drugs have side effects.
I have a mild form of cataplexy to others but still need to watch my emotions.

Posted Mar 3, 2017 by Dawnie73 600
Daytime Sleepiness, Paralysis, Cataplexy, Hallucinations, Brain Fog

Posted Apr 27, 2017 by Jennah 1100
Excessive daytime sleepiness and the inability to be awake when you need to be.

Posted Apr 28, 2017 by Emily 1115
For me it's the cataplexys but also the lack of motivation to do things and not sleep all day long.

Posted May 7, 2017 by Malin 1050
A person with Narcolepsy is constantly tired, have a hard time staying awake when doing something like sitting in a car, watching tv or other things sitting/laying down. Many of us have also cataplexys, which making us loose control over our muscles, for example in the legs, arms, face, tounge etc. We can basically go to sleep at any time during the day. We also have a hard time falling asleep at night, many have nightmares, hallucinations, and sleeping paralysis. Many sleep very bad during the night and wake up many times. Many of us have a hard time concentrating, and also very sensitive to for example sounds and noises. Many also have hard to remember things and have a bad memory.

Posted May 7, 2017 by 450
Cataplexy and sleep paralysis. Excessive daytime sleepiness and insomnia. Mild symptom is autonomic behavior.

Posted May 10, 2017 by Susan 1000
Excessive daytime sleepiness

Posted May 10, 2017 by Andrea 350
Most limiting: Excessive daytime sleepiness, microsleeps, cataplexy, lack of deep sleep, and energy levels.

I would get rid of the excessive daytime sleepiness/microsleeps and cataplexy. These symptoms are what limits me the most in functioning normally. I spend the majority of the day sleeping, never actually experiencing what a full day is. I have severe insomnia at night, my energy levels increase at night. I wish I could have good sleep instead of just REM sleep. I never feel refreshed in the morning after I sleep.

Posted Jun 3, 2017 by Tabbij13 830
Firstly, the obvious one being excessive daytime sleepiness. It is the most crippling factor of the condition, and the primary one.
Secondly, if you have Narcolepsy with Cataplexy then I would say Cataplexy is the next worst symptom.

Overall there are a lot of minor symptoms which result from both the medication and the disorder, but these are many in number and vary for the individual so it would not be pertinent to list them here. Finding a balance in medication and sleep hygiene is crucial for minimising these symptoms which can reach high severity levels if ignored and diet and lifestyle changes aren't made.

Posted Jun 12, 2017 by Ldparks 200
Sleepyness unable to stsy aeake unsble to finction.

Posted Jun 12, 2017 by Faith 2000
Excessive daytime sleepiness
Memory loss

Posted Jun 13, 2017 by Karen 2000
Excessive Daytime sleepiness

Posted Aug 17, 2017 by Laurie 2271
Constantly feeling exhausted.

Posted Sep 15, 2017 by Erin 100
Excessive sleepiness and cataplexy are the worst symptoms of Narcolepsy. Automatic behavior and micro-sleep attacks can make life very difficult. Sleep paralysis with vivid dreams can be anxiety provoking.

Posted Sep 26, 2017 by joyce 200
Always being tired and sleepy

Posted Sep 30, 2017 by Joel 600
Excessive daytime sleepiness and cataplexy (temporary paralysis triggered by emotion)

Posted Oct 6, 2017 by Aaron 2811
The inability to get restful sleep is the root cause of most of my issues, it's the cause of my daytime sleepiness & memory issues. The second one would be the sleep paralysis & hallucinations.

Posted Oct 24, 2017 by Ali 700
The very biggest issue with Narcolepsy is the absolute brain-dead tiredness. When a "nap attack" happens it is virtually impossible to stay awake at all. And if one does manage to remain awake in this condition, his (or her) actions may resemble that of a sleepwalker. Thoughts are muddled and the Narcoleptic Patient becomes very irritated with themselves and at the thought of an imminent nap which will hinder any activity or chore that was planned for the day...
As a Narcoleptic Patient I must sleep almost immediately when the attack happens... I sleep for roughly two hours every four hours. I can sleep anywhere, anytime... Except at night.

Posted Oct 26, 2017 by Jen W 200
The worst symptoms of Narcolepsy for me are cataplexy and "brain fog" and memory loss. If. I can indeed get rid of cataplexy with medications but nothing seems to help the brain fog and memory issues.

Posted Oct 26, 2017 by Cyn 610
Hipersomnya
Irresistible sleep atacks
Muscle weakness
You can have cataplexy or not (you can even colapse)
Memory loss
Automatic behavior
Cognitive deficit
Lack of attention
Trembling
Spasms
Sensations through all your body
Pain
Migrain
Sensation you are in a dream
hipnagogic hallucinations
Hiperfagia (sudden appetites)
A kind of vertigo
Facial paralysis
Palpebral ptosis
loss of vision (temporary)
Zombie like state (like you are not There)
Pain
Etc etc etc

Posted Nov 21, 2017 by sns 1510
Excessive daytime sleepiness and sleep attacks are some of the most limiting symptoms of narcolepsy without cataplexy. In PWN w/C, the cataplectic attacks are very limiting to a person's life. In all PWN (with or without cataplexy), interrupted sleep is also debilitating. The interrupted sleep, the night terrors, the hallucinations... It all lends itself to a state of constant exhaustion and confusion.

If I could get rid of some symptoms, the first ones would be the interrupted sleep (I think I would give almost anything for a solid night sleep!) and the sleep attacks.

Posted May 21, 2018 by chazer25 3050
Unfulfilling Sleep, irregular sleep patterns, excessive daytime sleepiness, insomnia

Posted May 25, 2018 by Brandi 300
Day time sleepiness, rem sleep majority of the time, sleep paralysis and hallucinations upon waking. This can be with or without cataplexy. Sleep paralysis and hallucinations are very scary, I couldn’t myself lucky not to have experienced this symptom. Day time sleepiness makes driving and working very hard. I’ve always had to work on my feet. If I sit down I will fall asleep. Cataplexy is the hardest for me. I never fall completely out but my knees get weak when I’m laughing and I usually end up on the ground. My arms and legs are always heavy and a constant reminder of the disease. If I could take anything about my disease away it would be the cataplexy. Though medicine has helped control these symptoms as well. I imagine if I had sleep paralysis and hallucinations I would want those eliminated more but I haven’t experience it. I’ve had mild sleep paralysis but never hallucinations.

Posted Jul 7, 2018 by Casey Veater 1100
Constant day time sleepiness, having trouble finding motivation to do things, suddenly falling asleep/passing out in public places (such as classes, restaurants, cars, public transportation). Feeling depressed or down, basic tasks require a lot of energy from you, you have issues partaking in social events because they tire you too much..

Possible extra is that roughly 70% of the narcoleptics also have cataplexy, which is a sudden loss of muscle tension in certain limbs when you feel a certain emotion (often laughter or shock)

Posted Nov 3, 2018 by Isabelle 200
Being tired all the time.

Posted Apr 16, 2019 by KLebal 300
Excessive sleepiness during the day, trouble sleeping at night, sudden muscle weakness (called cataplexy), and increased body temperature when sleepy. You may also get hallucinations at night and experience sleep walking.

Posted Aug 4, 2019 by Ottery 1300
Over sleeping and sleep par.

Posted Oct 13, 2021 by [email protected] 1700
Note… Not all patients have all symptoms

Disregulated sleep-wake cycle
Hypocretin/orexin deficiency
Excessive daytime sleepiness
Cataplexy
Sleep paralysis
Automatic behaviors
Hypnagogic and hypnopompic hallucinations
Genetic markers on HLA-DQB*06.02

Posted Oct 13, 2021 by MandyW 600
Extreme daytime sleepiness

Posted Jul 13, 2023 by Feri Ascencion 1833
Translated from spanish Improve translation
episodes of sleep throughout the day. Cataplejias

Posted Apr 27, 2017 by marisa rosello 1050
Translated from french Improve translation
Fatigue (physical and psychological)
The Drowsiness
The cataplexies

Posted Apr 27, 2017 by Laïli 1000
Translated from spanish Improve translation
♤ Sudden attacks of sleep
♤ Irritability
♤ Difficulties of coordination
♤ Feeling of not mastering the body
♤ Fatigue generalized

Posted Jul 22, 2017 by 100
Translated from spanish Improve translation
Daytime fatigue excessive, excessive need of sleep, cataplejias, muscle atonia.

Posted Nov 2, 2017 by Juan 1500

Narcolepsy symptoms

Narcolepsy life expectancy

What is the life expectancy of someone with Narcolepsy?

19 answers
Celebrities with Narcolepsy

Celebrities with Narcolepsy

3 answers
Is Narcolepsy hereditary?

Is Narcolepsy hereditary?

12 answers
Is Narcolepsy contagious?

Is Narcolepsy contagious?

15 answers
Natural treatment of Narcolepsy

Is there any natural treatment for Narcolepsy?

10 answers
ICD9 and ICD10 codes of Narcolepsy

ICD10 code of Narcolepsy and ICD9 code

10 answers
Living with Narcolepsy

Living with Narcolepsy. How to live with Narcolepsy?

19 answers
Narcolepsy diet

Narcolepsy diet. Is there a diet which improves the quality of life of peop...

22 answers

World map of Narcolepsy

Find people with Narcolepsy through the map. Connect with them and share experiences. Join the Narcolepsy community.

Stories of Narcolepsy

NARCOLEPSY STORIES
Narcolepsy stories
I have suffered from chronic pain for 22 yrs. I have 5 bulging and herniated disc's, DDD, Fibromyalgia, CTS, CFS, Narcolepsy, PTSD (9/11) and recently due to Fibro I fainted and injured both ankles, both knees, R wrist and my neck from hitting my fac...
Narcolepsy stories
If you have any questions or just want to chat, just contact me. :) It all started slowly in maybe february 2011. I had just finished being in a professional theater play for chritsmas a few months before, and troubles started in my family. I felt t...
Narcolepsy stories
Jeg har klassisk narkolepsi med katapleksi, som først gav seg utslag i kraftig vektoppgang da jeg var 23 år gammel. Det skulle riktignok gå tolv år til før diagnosen ble satt - og på disse tolv årene var jeg innom en hel del forskjellige fastl...
Narcolepsy stories
I've had Narcolepsy with Cataplexy my whole life, but I wasn't diagnosed until 2008-2010.  It took me a few years to find & build a relationship with a good sleep specialist.  Right now I have medications that help me get by as a mother and part...
Narcolepsy stories
I have narcelpsy and cataplexy

Tell your story and help others

Tell my story

Narcolepsy forum

NARCOLEPSY FORUM
Narcolepsy forum
Does anyone experience severe body pain? Especially upon waking up and if not moving frequently. I wake up in a lot of pain every moring. I know that I clench my muscles while I sleep (although I am trying to convince my Dr. otherwise) as I have been...
Narcolepsy forum
Does anyone currently/previously have/had problems with weight GAIN &/OR bloating from Xyrem? If so... Have you found anything that helps?
Narcolepsy forum
Anyone has experienced any kind of memory loss? I have problems to remember things just after doing or telling them and I think it could be related to the narcolepsy
Narcolepsy forum
Has anyone ever noticed a corrolation between people who have narcolepsy and are also psychically sensitive?
Narcolepsy forum
I have been recently (like 1 month ago) diagnosed with Narcolepsy and also diagnosed with Sleep Apnea about 1 year ago. My question is maybe a but vague... Since this is alll so new to me, I've reaized that since I have had this condition for so many...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map