Atrophy of muscles and tissue on one side of the face. A few have more severe atrophy than others. My case is severe- no muscle and paper thin skin on almost the entire right side of my head, plus some atrophy on right side of tongue.
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My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...