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What are the best treatments for Parry-Romberg syndrome / Progressive hemifacial atrophy?
See the best treatments for Parry-Romberg syndrome / Progressive hemifacial atrophy here
So far medications have failed. Acupuncture seems to help the tightness.
Posted Mar 4, 2017 by Hannah 1050
Tissue graft from a healthy, well vasculated donor site from another part of your body, parachuted under the skin of affected side, then anchored to bone and vascularly connected to affected site. This stops the progression. The healthy tissue does not succumb to PRS.
Different medications might help. I strongly advise you and your doctor to look up information and articles in medical libraries, in as many medical journals as you can, and find out the various ways people have been treated for this. Some use methotrexate, some have infusions of solumedrol, some take low doses of prednisone, etc. Find out your options! Ask your doctor for access to medical university libraries (physical and virtual) so you can learn about your own disease-- or ask for a referral to a doctor who can grant that access.
Different medications might help. I strongly advise you and your doctor to look up information and articles in medical libraries, in as many medical journals as you can, and find out the various ways people have been treated for this. Some use methotrexate, some have infusions of solumedrol, some take low doses of prednisone, etc. Find out your options! Ask your doctor for access to medical university libraries (physical and virtual) so you can learn about your own disease-- or ask for a referral to a doctor who can grant that access.
Posted Mar 4, 2017 by Barbara 1000
