1

Which are the symptoms of Pierre Robin Syndrome?

See the worst symptoms of affected by Pierre Robin Syndrome here

Pierre Robin Syndrome symptoms
3 answers
The symptoms of Pierre Robin will differ from person to person. The condition is generally more prominent at birth and the symptoms lessen with time.

The biggest problems were around breathing due to the small lower jaw and the tongue dropping back restricting air and feeding. Both my children needed a feeding tube for 12 months but their synptims other than that were quite different.

Posted Aug 14, 2017 by Della 1000
I think the biggest struggle I've seen with most PRS babies is breathing, because their chins so small it closes off their air way more. But that of course certs with each child. My daughter didn't struggle with that, the biggest struggle so far for her was trying to get her to eat from a bottle rather then a tube

Posted Sep 7, 2017 by Hailey 3200
The small jaw and small tongue means the tongue control can effect the breathing

Posted Sep 7, 2017 by Charlotte 550

Pierre Robin Syndrome symptoms

Pierre Robin Syndrome life expectancy

What is the life expectancy of someone with Pierre Robin Syndrome?

4 answers
Celebrities with Pierre Robin Syndrome

Celebrities with Pierre Robin Syndrome

2 answers
Is Pierre Robin Syndrome hereditary?

Is Pierre Robin Syndrome hereditary?

4 answers
Is Pierre Robin Syndrome contagious?

Is Pierre Robin Syndrome contagious?

5 answers
ICD9 and ICD10 codes of Pierre Robin Syndrome

ICD10 code of Pierre Robin Syndrome and ICD9 code

2 answers
Natural treatment of Pierre Robin Syndrome

Is there any natural treatment for Pierre Robin Syndrome?

2 answers
Living with Pierre Robin Syndrome

Living with Pierre Robin Syndrome. How to live with Pierre Robin Syndrome?

4 answers
Pierre Robin Syndrome diet

Pierre Robin Syndrome diet. Is there a diet which improves the quality of l...

3 answers

World map of Pierre Robin Syndrome

Find people with Pierre Robin Syndrome through the map. Connect with them and share experiences. Join the Pierre Robin Syndrome community.

Stories of Pierre Robin Syndrome

PIERRE ROBIN SYNDROME STORIES
Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008. The Story of Joshua Parkes and how this foundation came into being. Joshua was born on the 20th October 2008, the happiest day ev...
Pierre Robin Syndrome stories
HELLO EVERYONE MY SON WAS BORN THE 3/3/16. MY SON IS 6 MONTHS OLD ALMOST 7MONTHS OLD HE HAS MICROCEPHALY,  LARYNGOMALICA, DANCING EYES, VOCAL CORD PALSY, BRAIN ATROPHY, PRS (PIERRE ROBIN SEQUENCE) AND A HIGH PALATE, SLEEP APNEA, BREATHING PROBLEMS....
Pierre Robin Syndrome stories
My daughter was born with mild PRS and a cleft soft palate. 
Pierre Robin Syndrome stories
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
Pierre Robin Syndrome stories
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...

Tell your story and help others

Tell my story

Pierre Robin Syndrome forum

PIERRE ROBIN SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map