Which are the symptoms of Sarcoidosis?

See the worst symptoms of affected by Sarcoidosis here

Posted Apr 3, 2018 by ASSOCIATION CŒUR COULEUR

I habe neurosarcoid .So I think the worse part about it is the decreased mobility and loss of balance.

Posted Apr 1, 2017 by Andrena Senola 400

That is very hard to determine since Sarcoidosis affects everyone differently. For me it is the daily fatigue and your mind not being clear and staying on task. It is also hard to get excited over anything.

Posted Apr 18, 2017 by Curt Hodapp 1150

Shortness of breath, fatigue and pain.

Posted Apr 19, 2017 by Terika 1000

Daily unbearable pain and fatigue is by far the worst. Also depending on your stage and lung involvement would be shortness of breathe.

Posted Apr 19, 2017 by Poliseno 1000

Pain, fatigue

Posted May 2, 2017 by Sheila 350

not being able to breath

Posted May 9, 2017 by Michael 1150

Chronic cough breathlessness night sweats and weight loss

Posted May 31, 2017 by Salosh 3601

Neurosarcoidosis symptoms, rashes and skin sarcoidosis ,
lung involvement with losing capacity of lungs

Posted May 31, 2017 by Mihaela 800

Cough. Painful joints

Posted Sep 7, 2017 by Jennie 400

Shortness of breath and pain

Posted Sep 7, 2017 by Kristie 2000

Pain. The pain in my nerves are horrible.

Posted Sep 10, 2017 by Maggie 1100

Difficulty breathing due to compromised lungs

Posted Sep 11, 2017 by Shari 300

Night sweats , sleeping for hours, excessive rapid weight loss, listlessness,

Posted Sep 11, 2017 by XTIENNA 2000

Breathing difficulty is often common in sarcoidosis making every day life more difficult. Many people also have joint pain, severe tiredness and a general feeling of being constantly unwell. If you could get rid of any symptoms it would be the pain that comes with some of the symptoms. Secondly the tiredness.

Posted Oct 26, 2017 by Diane 2735

Loss of quality of life
Dependence on medication to relive some of the symptom's
Chronic pain /fatigue brain fog due to side effects of medications
Reliance on others to do some of the work you used to be able to do your self
Would love more energy to be able to do more than I am able to do now
Pain in lungs due to sarcoid scars to be completely gone

Posted Oct 27, 2017 by Stewart 2000

Lack of energy, joint pain, breathlessness, brain fog, sweating

Posted Oct 27, 2017 by KindredSpirit 2050

Fatigue
Pain
Neurological symptoms and after effects

Posted Oct 27, 2017 by Wendy 2000

Irritating cough
Painful skin lesions
Sore/painful joints
Fatigue

Posted Oct 27, 2017 by Sandra 1200

Fatigue and breathlessness

Posted Oct 28, 2017 by Penny 1200

Tiredness, uncontrollable discomfort, what the disease leaves you with years along the line...

Posted Oct 28, 2017 by Edana 400

Short of breath
Weight loss
Loss of appetite
Fever
The most limiting condition, according to my experience, is being short of breath. Being short of breath limits you from doing the regular activities e.g. household chores, holding a lengthy conversation, running for a bus etc.

Fatigue comes in at a later stage followed by aches and pains. Sometimes getting out of bed is a problem because the body feels as if it was run over by a trailer truck.

Posted Oct 28, 2017 by Jessica 600

Difficulty breathing .. especially in damp weather
Fatigue .. even when I've just got out of bed. Conversely I am sometimes so lethargic I can hardly move but can't sleep when I lie down
SWEATS .. they come from nowhere, are not accompanied by any flushes or temperature and literally drip down my face and off my chin. My hair becomes saturated and sweat literally drips off the ends. I can no longer wear man-made fabrics because they aren't absorbent.
Repeated chest infections requiring steroids
Sinusitis .. recurrent bouts

Posted Dec 19, 2017 by Lynden1961 150

The pain in whole body... the pain

Posted Jan 11, 2018 by Cathleen 1900

When you have Sarcoidosis in your lungs, it affects everything you do. If you get too hot, too cold, breath dirt, dust or smoke you may have a hard time breathing. Also, skin lesions. They get real red, sore, scaly and itch not to mention unsightly.

Posted Mar 30, 2018 by Rende 200

Shortness of breath has been the worst symptom for me, personally. I have scar tissue in my lungs and if I could get rid of that, I would do it in a heartbeat.

Posted Apr 2, 2018 by Lisa 1100

Fatigue, it is the one thing I'd like to change. Some days are worse than others.

A cough - only when my flare is bad.
Aching- during a flare

Posted Jul 4, 2018 by msinky 2550

Sarcoidosis is an inflammatory illness of the immune system. Our bodies send lymphocytes to parts of our bodies the immune system ‘thinks’ they’re needed, but are in actuality, not. These lymphocytes gather in the spot they’ve been sent to, and eventually clump up together and form granulomas. Granulomas, if left in place and untreated, become fibroids, a physical manifestation of excess lymphocytes that is far more difficult to remove than granulomas. Granulomas are often referred to as ‘snow balls’, due to their appearance under a microscope.

Posted Oct 15, 2018 by Rika 1930

Fibromyalgia
Fatigue
Pain
Shortness of breath
Migraines
Joint stiffness
Hot hands & burning feet
Fog brain
Uveitis - itchy and blurry eyes
Eczema

Posted Oct 15, 2018 by Zaida 1050

Sarc is a cluster of granomas causes inflammation. It is usually in the lungs but can also be in the lymph nodes and spread from there. I found out that I had it when to Cleveland clinic.. I had it in my eye which caused warped vision. I started with a rash on my left shin..they gave me steroids in eye drops and I had shots in the eye. They the steroids were more of irritant then it helped so I stopped using it. Sarc usually goes away on its own but there some that have it hang on because of a weakened immune system.

Posted Nov 13, 2018 by Sue 200

Some of the basic Symptoms are breathlessness, fatigue, chest pain, not being able walk long distances, losing hair, itchiness for no reason, coughing and clearing your throat...

Posted Nov 13, 2018 by Wen 2100

Shortness of breath/lung restriction, vision problems, skin problems, fatigue.

I would love to have my full lung capacity back.

Posted Oct 8, 2019 by Lynn 900

Shortness of breath. The coughing fatigue

Posted Oct 8, 2019 by Lashawn 2500

The joint pain and the way sarcoidosis effects your organs would be first on my list. Secondly would be the fatigue.

Posted Oct 8, 2019 by Jennifer 100

Sarcoidosis can effects your entire body. I have it in my lungs my heart my bones and they believe it was in my kidney. My chest cavity is full of sarcoidosis. I just wish I can breathe better and I had more energy. I am also in a lot of pain. But not everybody feels the same way that why it's called it the snowflake illness because no one is the same and it does not effect the same organs in everyone's body.

Posted Mar 8, 2020 by Elizabeth 4800

Persistent dry cough.
Shortness of breath.
Wheezing.
Chest pain.
Extreme tiredness.
Fever.
Inflammation of the eyes and pain, burning, blurred vision, and light sensitivity.
Night sweats.
Pain in the joints and bones.
Skin rashes, lumps, and color changes on face, arms, or shins.
Swollen lymph nodes.
Weight loss.

Posted Jan 18, 2021 by Althea 4550

Breath issues
Chest Pain
Joint pain
Anxiety
Fatigue

Posted Feb 13, 2021 by Hélène 1100

Fatigue, joint pain, nodules in lungs, eyes, skin, muscle pain, asthma.

Posted Sep 14, 2023 by Emma Johnson 2500

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First the muscle pain.
Fatigue, more strength

Posted Sep 7, 2017 by Tiberi Antonio 120

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the nodules fever painful joints loss of weight fatigue problems visual and the coughing dried ....................

Posted Sep 8, 2017 by Lamya 100

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