Living with Syringomyelia going on 30 years now.
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When i was in high school I used to work after school unloading trucks by hand. I remember taking hold of a
boxed artificial Christmas tree and jumping out of the back of the trailer, when I landed it felt like I tore a muscle in my chest, I am a big guy so I didn't really pay any attention to it, I lifted weights at the time, so I tore plenty of muscles. After a number of years I remember going on a trip with my dad to Mammoth cave, we were walking along and I noticed that I was tripping over every little thing, I couldn't understand why. Then a short time later, I noticed I was losing feeling in my right arm and I didn't sweat on my right side. I thought I was a tough guy and just pinched a nerve or something, well not long after that I started messing my pants, and I had a hard time shaving because I could no longer see out of the corners of my eyes, that's when I finally couldn't keep pretending that nothing was wrong, so I went to my doctor, it was May of 1992 they ran simple tests on me and couldn't figure out what the problem was, so he sent me to a neurologist, the neurologist asked what my symptoms were and said I know exactly what's going on, he did a MRI to confirm his diagnosis and was right, I had Syringomyelia and I was at the verge of my internal organs shutting down, we caught it just in time.
Unfortunately in 2005 I started having symptoms again, I had flashbacks of my 1st Syringomyelia experience and knew it was back, this time in my thoracic spine, so another shunt was put in.
It's now 2022 and I'm having more symptoms, I know I need to tell my neurosurgeon I'm just afraid of having another surgery, but if things keep getting worse, I won't have a choice.
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