I wish it was talked about more and if anyone with a platform out there is living with it don't be afraid to speak up and out about it. Its difficult living with it and explaining it to someone when your appearance seems fine, i know from experience, i even had a doctors think i was faking, over exaggerating, or just plainly put "messed up"...thats one of the worst feelings when you don't even know what it is thats goin on at the time!!