8

Which advice would you give to someone who has just been diagnosed with Adenomyosis?

See some advice from people with experience in Adenomyosis to people who have just been diagnosed with Adenomyosis

Adenomyosis advice
2 answers
Learn about what can slow the growth and do it. Research every part of the disease and become your own advocate.

Posted Mar 20, 2017 by Kate 1000
Seek out a dr who is knowledgeable about the condition. Also have a conversation with yourself and your partner about if family planning is complete and when you are comfortable with having surgical intervention.

Posted Sep 10, 2017 by Marissa 2010

Adenomyosis advice

Adenomyosis life expectancy

What is the life expectancy of someone with Adenomyosis?

2 answers
Is Adenomyosis contagious?

Is Adenomyosis contagious?

2 answers
Celebrities with Adenomyosis

Celebrities with Adenomyosis

Is Adenomyosis hereditary?

Is Adenomyosis hereditary?

1 answer
ICD9 and ICD10 codes of Adenomyosis

ICD10 code of Adenomyosis and ICD9 code

1 answer
Natural treatment of Adenomyosis

Is there any natural treatment for Adenomyosis?

1 answer
Living with Adenomyosis

Living with Adenomyosis. How to live with Adenomyosis?

2 answers
Adenomyosis symptoms

Which are the symptoms of Adenomyosis?

3 answers

World map of Adenomyosis

Find people with Adenomyosis through the map. Connect with them and share experiences. Join the Adenomyosis community.

Stories of Adenomyosis

ADENOMYOSIS STORIES
Adenomyosis stories
I have always had painful periods that would make me miss school and work, but was told it was normal. Had my first child at 21, after she was born I developed deep rectal pain that would last 12 hours straight of me laying in bed screaming on the fi...
Adenomyosis stories
I have suffered since age 13 with "bad" periods. Heavy, painful and constant overflows or accidents as a teenager - debilitating pain that saw me take prescription pain killers which didn't even touch the pain. Looking back it was a terrible time, I ...
Adenomyosis stories
I have suffered since the age of 25, although had symptoms before then. Only officially diagnosed in 2012 at the age of 35 after being diagnosed with endometriosis when I was 32 by a general gynae. Adenomyosis diagnosis was from an endometriosis spec...
Adenomyosis stories
In my role as an endometriosis advocate, I am helping a company who are researching adenomyosis and who are looking for women living in the US, who have adeno (and also endo) diagnosed by MRI, to interview by phone at your convenience. (There are a c...
Adenomyosis stories
My Adenomyosis is diffuse and was diagnosed through an MRI with contrast and recto signal gel.  Adenomyosis in my case is more of a form of deep infiltrating endometriosis invading the outer surface of my uterus from behind. Main disease is endome...

Tell your story and help others

Tell my story

Adenomyosis forum

ADENOMYOSIS FORUM
Adenomyosis forum
Hello, my doctor has diagnosed me with Adenomyosis... it is not 100% sure so I’m having a magnetic resonance to confirm... Is it common on women of my age? I though not… thanks 

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map