ME/CFS life... mostly bed/housebound 25/Female (+IBS, FM, others)

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I was diagnosed in 2016, after 6+ months of illness (started 2015). I have gotten worse since. I take treatments and see a CFS/ME + FM specialist. 

 

I am unable to leave the house more than once a week most weeks. If I leave, I suffer for days after.

 

I am constantly plagued by malaise and exhaustion and pain. I also get PEM (post exhertional malaise) from things as simple as watching TV.

 

Pain is usaully between 7-9/10 on any given day. 

 

I often wonder if I had rested more and not pushed myself so hard working if I would be as sick as I am now. Did I set myself up to get this sick over a common virus?

 

IBS: many studies, several years- no results. Flares and remits over years and months. Was IBS-D when it started now is IBS-M. Has remitted lately.

 

FM: lifelong symptoms, no one took seriously or cared. When I was finally diagnosed, my doctor neglected me as a patient and offered me nothing. What meds I did take made me sick and launched me into an almost year long recovery from the side effects. Frustrated, I got help from other doctors- nothing they gave me helped.

I am now seeing a specialist for this.