water, salt, compression socks
nothing
Support and understanding. Member of numerous support groups, keep up with trials and research and a positive outlook.
Pace myself through the day and take breaks when I need them. Use the riding cart if needed at the store.
lots of rest the more I move around the worse I get- I save my moving around for showers and the most important things I need done but most of the time I can not even take a shower I am pretty disgusting most of the time and starving from not being able
Have a team
Diet and H2O
Listen to your body. For example, if you're dizzy, lay down!
Increased water & salt intake
Changing my diet and having a good mindset no matter what
Changed the way I eat, sleep and function along with using THRIVE to feel better.
My family supporting me.
Thigh high compression stockings (30-40)
Drink plenty of fluids (with sodium/salt)
Some awesome friends who have NEVER doubted me or throw my symptoms back in my face
my dr sica
Green juice and IVs
Diet, medication and appropriate exercise are vital
Talking to my mom when I feel down about being sick.
Stay Hydrated!
I have started a foundation called Keep Moving Help Colletto Cure SPS to give me purpose. I am a special education teacher.
5-7 bananas per day and 50 oz of water of more
My husband- a man who works in healthcare going to appointments telling them it is not anxiety. They didn't believe me.
my TENS unit
My oldest give me information on what to do and some of. The meds. To take it helps some.
Gabapentin. Keeps bp and HR from bouncing so fast and to such extremes,
Lots, lots and lots of water
Sleep
Hydration
Having my kidney sewn to my back.
A loving friend
Family & Friends
slow down, being mindful makes it much more manageable
Being able to help out friends when they need advice makes me feel useful again.
Increasing Salt
Exercise
Exercise
Finding good Doctors is so important.
Having a dr that you are comfortable with!
Exercise
Yoga, meditation, art/music therapy, massage
Yoga, meditation, art/music therapy, massage
Pacing yourself. Listen to your body when you're tired then rest.
My husband bringing me Starbucks in the morning
Needed Surgeries
Sublingual zofran
A real diagnosis, and more supportive doctors
Having time to rest on a busy day
Having time to rest on a busy day
Salt