Story about Ehlers Danlos , Asperger Syndrome, Bipolar Disorder, Dysautonomia / POTS, Ehlers Danlos, Madelung Deformity, Sleep Apnea, Autism.

The tridiagnosed

Sep 30, 2019

By: Amy

Year Condition Began: 2000


My sister and I were born in September of 1996 We were premature as most multiples are I was actually a lot Quieter than my sister When we were babies My parents and some of my family called me angel Amy when Katie and I were one and I actually I had already said my first word However Katie has not when the two of us were a year and two months my sister said her first word my mom noticed when we were getting a little older that I was very shy and didn’t talk much I would hide under tables at parties because I was too shy when we were three we already started preschool I still would not talk much I would have self injury behavior My parents had my speech evaluated in preschool my parents had my speech evaluated in preschool my twin and I did preschool when we were four our brothers Timmy and Kurt were born my mom noticed that my brothers were developing more of us some more rate then my sister and I. My sister and I started kindergarten a year early and I developed an obsession with pigs I was Bullied a lot through third grade And my mom brought me to a developmental pediatrician he diagnosed me with attention deficit hyper activity disorder Combine subtype. In fourth grade the bullying got A lot worse my social skills were a huge concern for my mom I also had a lot of anxiety and mood swings. I am mom took me to a psychiatrist in fourth grade and they diagnosed me with what was at the time called Asperger syndrome which now is called autism spectrum disorder level one. I started going to the public school in fifth grade and the bullying was really really bad And it wasn’t just verbally then now it was physical as well I went to the middle school in sixth grade and then the bullying got even worse In seventh grade a kid told me something about the consumption of pig and it caused me to run to the nurses office fight the nurse for the keys and I got into the cabinet And came close to overdosing on a lot of different medications luckily the nurse stopped me however then I ran outside and laid in a busy street I had to go to the hospital when this Was also triggered by me finding out that my twin sister was going to skip a grade and be a grade above me And go to college before me I got to be homeschooled and that was amazing in high school I was no longer bullied I was diagnosed with Ehlers-Danlos when I was 21 and I was in a facility to learn DBT I graduated from the program that was in Marshall Missouri and move back to St. Louis Missouri however my twin graduated from Stanford and was going to work for Facebook so she was still all the way in California and I live and ISL Through Easter seals and On September 23 of 2019 I was diagnosed with Madelungs deformity Which three days after my diagnosis I found that ironically I was diagnosed on Madelungs deformity Awareness day now this is where I am at
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