Story about Erythromelalgia , Klinefelter Syndrome.

Red Pain

Sep 16, 2017

By: Jeff

Year Condition Began: 2005


I was 18 when I first started noticing the burning pain associated with working out and being in hot humid environments and so I went to my doctor and asked him about it and he didn't have a clue so he sent me to an endocrinologist. To save you a bunch of time I went back and forth from every type of specialist out there until I landed on a rheumatologist who had actually heard of this disease and was treating another patient with Erythromelalgia. She tried me on a lot of different medications and Tramadol and Lyrica and it up helping the most. Now I have lost so many jobs due to having this condition. Every single one of my jobs I was fired due to having so many absences and that's just it I wasn't sick or on vacation it was just having to deal with not being able to sleep or constantly being in pain every minute of every hour of every day. I have finally decided to try and get long term disability because I have tried working in a job where there is constant air conditioning and I'm sitting down all day but that doesn't help. I just take life one day at a time and hope that a cure will come out soon.
Story about Erythromelalgia

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Do I have Erythromelalgia?

How do I know if I have Erythromelalgia?

History of Erythromelalgia

What is the history of Erythromelalgia?

Celebrities with Erythromelalgia

Celebrities with Erythromelalgia

Erythromelalgia sports

Is it advisable to do exercise when affected by Erythromelalgia? Which...

Erythromelalgia prognosis

Erythromelalgia prognosis

Erythromelalgia causes

Which are the causes of Erythromelalgia?

Erythromelalgia jobs

Can people with Erythromelalgia work? What kind of work can they perfo...

Erythromelalgia cure

Does Erythromelalgia have a cure?