Story about Multiple Systems Atrophy .

My fight with MSA

Aug 19, 2017


My name is Terry. I was Terri's husband before she passed from MSA on May 14, 2017.

Her journey with symptoms started as far back as 1995, with vertigo issues. She was treated with Yoga, PT, Water therapy etc.

By 2010, it was much more evident something else was going on, balance, speech, motor skills, emotions, anxiety were deteriorating.

Between 1995 and 2015, she was examined at UIHC, Northwestern University, Rush Memorial, Chgo Diszziness Clinic, Cleveland Clinic, and finally at Mayo.

In November, 2015, Mayo finally named MSA, rather than progressive MS and Parkinsonism, as her disease.

Terri requested her brain be harvested for research and disease confirmation. We did that, and Mayo has now confirmed she died of MSA.

 

 

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