20

What are the latest advances in Phyllodes tumor?

Here you can see the latest advances and discoveries made regarding Phyllodes tumor.

Latest progress of Phyllodes tumor
7 answers
Website about Phyllodes tumors has been launched!

Phyllodes tumors are relatively rare. Therefore there is little information
available, even for doctors. In order to get more attention for this special breast
tumor, a group of volunteers involved has set up a website. www.phyllodestumor.org , which is part of www.phyllodes.net

The available information so far about Phyllodes has been spread over various sites,
trade journals and support groups. For www.Phyllodestumor.nl, volunteers
have brought all available information in one place.
The site has been set up to share the knowledge about this rare tumor with both
patients and physicians. On www.phyllodestumor.org articles and information about this rare form of breast tumors are readily available.
In addition, the site provides information about the different forms, treatment
methods, prognoses and risks of Phyllodes tumors.

The content of the site was developed in collaboration with breast cancer surgeon Mr. F. van Duijnhoven (AVL A’dam).

Launch: Thursday 6 September 2018 4 pm
Antoni van Leeeuwenhoek hospital
Plesmanlaan 121
1066 CX Amsterdam

For more information about Phyllodes tumors, please visit www.phyllodestumor.org

Posted Aug 29, 2018 by Phyllodesfoundation.com
It is a rare cancer .
Surgery and radiotherapy so far have been the only successful method of dealing with the cancer

Posted Oct 8, 2017 by 1200
You can read a lot of information in the internet. The best is to find a very good doctor who is up-to-date with this desease can do not get too confused by the media

Posted Nov 26, 2017 by Sabrina 2500
Diagnosis is usually rapid - as is treatment - a scary place to be but the medical profession is amazing

Posted May 6, 2018 by Marie 2500
In place of radiation look into Proton Beam Therapy for radiation. This method targets a more specific area and has less long term side effects than radiation.

Chemotherapy is recently being explored for preventing future metastasis in high grade malignant tumors. The chemo drugs I am having are Epirubicin and Ifosfamide with Mesna.

Posted Apr 21, 2019 by Ashlie 1800
There is much conjecture as to treatment of PT.
Minimum margins of 1cm are standard but not always adhered to. Some suggest chemo and rads but most agree they provide little to no benefit. Standard treatment for a MPT is mastectomy with or without reconstruction.

Posted Aug 10, 2020 by Simone Lovett 2550
There is very little research because it is so rare.

Posted Sep 26, 2020 by Lucy 3570

Latest progress of Phyllodes tumor

Phyllodes tumor life expectancy

What is the life expectancy of someone with Phyllodes tumor?

18 answers
Celebrities with Phyllodes tumor

Celebrities with Phyllodes tumor

6 answers
Is Phyllodes tumor hereditary?

Is Phyllodes tumor hereditary?

15 answers
Is Phyllodes tumor contagious?

Is Phyllodes tumor contagious?

16 answers
ICD9 and ICD10 codes of Phyllodes tumor

ICD10 code of Phyllodes tumor and ICD9 code

8 answers
Natural treatment of Phyllodes tumor

Is there any natural treatment for Phyllodes tumor?

10 answers
Living with Phyllodes tumor

Living with Phyllodes tumor. How to live with Phyllodes tumor?

13 answers
Phyllodes tumor diet

Phyllodes tumor diet. Is there a diet which improves the quality of life of...

17 answers

World map of Phyllodes tumor

Find people with Phyllodes tumor through the map. Connect with them and share experiences. Join the Phyllodes tumor community.

Stories of Phyllodes tumor

PHYLLODES TUMOR STORIES
Phyllodes tumor stories
In February 2015 I found a lump in my right breast. I was diagnozed with fibroadenoma, but it appeared to be a benign PT (2 cm., surgery in March). No margins taken although the initial path report stated BPT. Final path report confirmed no clear tis...
Phyllodes tumor stories
I had what was termed a harmless fibroadenoma removed in June of 2007. At the age of 33, I had my first baby and was nursing him. He was born in December. The following November, I noticed that my scar tissue felt different. I had an ultrasound and ...
Phyllodes tumor stories
I felt a rather large Lump in my Left Breast at the 2 O'Clock position. I was just due for my Mammogram and scheduled it. A subsequent needle biopsy showed MPT with Liposarcoma component. I am scheduled for a bilateral Mastectomy 8/18/15 with reconst...
Phyllodes tumor stories
After years of multiple lumpbectomies ,seeing a oncologist due to my sister having breast cancer ,my high risk and Years of mammograms, ultrasounds and breast MRIS. My Dr. Advised me to get a prophylactic mastectomy due to things still being found an...
Phyllodes tumor stories
My MPT started a year after constant stress and caring for a partner with cancer. I had no time for myself to keep my stress levels down and I believe this is the reason I became ill. Though doctors had some knowledge of the disease it was not I fel...

Tell your story and help others

Tell my story

Phyllodes tumor forum

PHYLLODES TUMOR FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map